Carry on

I have realised that many posts I make on Facebook lately end with, "that is all, carry on." I mean it, I really do. What do I mean?
Well, I know everyone has their own life, their own joys, struggles, hardships and victories. I know all too well, as described in previous posts here, that my personal battles are not necessarily high on the list of things to worry about for many people around me. So I post a thought or rant and appreciate you reading it, but understand that your life needs to go on, thus the conclusion to my post, "carry on."

For me right now, to be able to do that in my own life is nearly impossible. I started experiencing pain, the stabbing, electric shocks of pain deep in my ear, mostly triggered by swallowing. This is not usually a symptom of TN. I recently saw my doctor and have now received the confirmation that it's a different type of neuralgia. This is genticulate neuralgia. Rare, as TN is and the fibrous dysplasia (bone tumor) that I have, but even more difficult to treat. Psychologically, this is a major blow. Any new symptoms when you're already fighting to find help for the old ones, just seems to be another slap in the face. You find yourself screaming at the universe, begging for a break.
With new symptoms, comes new meds or trying old meds again. This brings with it the dreaded side effects and horrible brain fog. I'm trying desperately to "carry on" right now with my family, my job, my hobby-turned-small business.... I'm trying.

To my fellow warriors, may the elephant on your face be gentle with you today and allow you to carry on.

There's an elephant on my face by Lianne Keiller is licensed under a Creative Commons Attribution 4.0 International License. Subscribe in a reader